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RickJ

Multiple Myeloma Discussion • December 30, 2024

An Inspiring Immunotherapy Success Story

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Jimmy Carter had a lot to do with immunotherapy. Metastatic melanoma was a death sentence in 2015. Then Jimmy Carter stepped in. https://www.yahoo.com/news/metastatic-melanoma-death-sentence-2015-001039749.html

Metastatic melanoma was a death sentence in 2015. Then Jimmy Carter stepped in.

The Jimmy Carter drug introduced the world to cancer immunotherapy, a treatment that differs from chemotherapy. Carter was diagnosed with melanoma in 2015.

https://www.yahoo.com/news/metastatic-melanoma-death-sentence-2015-001039749.html

Isaac

Multiple Myeloma Discussion • December 29, 2024

Sharing Experiences: Venetoclax Maintenance Post-ASCT?

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Hello, I have translocation 11;14 and responded exceptionally well to venetoclax prior to ASCT. After ASCT my doctor wants to continue me on venetoclax as maintenance therapy. Has anyone had a similar experience; anyone used venetoclax and dexamethasone for maintenance? Was it successful? Thank you 🙏

Krose

Multiple Myeloma Discussion • December 28, 2024

Sharing VA Disability Info for Veterans

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Hello All, Hope you are doing well. If you served in the military oversees, you are likely eligible for VA Disability benefits as they now consider MM a presumptive condition due to toxic exposure. I filed my claim in early December and it was just approved. MM gets an automatic 100% rating for 5 years and you also get VA health care benefits. Message me if you want more information on what we included in the claim. https://www.va.gov/disability/

VA disability compensation | Veterans Affairs

VA disability compensation (pay) offers a monthly tax-free payment to Veterans who got sick or injured while serving in the military and to Veterans whose service made an existing condition worse. You may qualify for VA disability benefits for physical conditions (like a chronic illness or injury) and mental health conditions (like PTSD) that developed before, during, or after service. Find out how to apply for and manage the Veterans disability benefits you’ve earned.

https://www.va.gov/disability/

dtgeistmanranch

Multiple Myeloma Discussion • December 27, 2024

Managing Insomnia & Constipation on Revlimid?

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Good day to all! I’m 28 months post SCT for stage 1 MM. currently on Revlimid 10mg 14 days out of 28 day cycle. This may seem trivial to some, but not to me.. I have had a daily problem with insomnia and constipation. I follow all the recommended sleep hygiene practices and follow a good diet and get exercise. I’ve tried many supplements for both of these conditions. Thus far, I continue to be plagued by both problems. I’m looking for new ideas that might help me. God bless you all.