Your Feed

Filter by
See content from
Back to the latest
Avatar
XimenaG • Admin
Acute Myeloid Leukemia Discussion • November 14
Support Research: 3X Donation Match
💥 Your gift can go 3X further for blood cancer research! Now through December 31, your tax-deductible donation will be TRIPLED 3X, thanks to the generosity of the Paula and Rodger Riney Foundation. That means: 💲$1 = $3 💲$50 = $150 💲$100 = $300 The best part: 100% of your gift goes directly to blood cancer research. 🧬3X your impact today: https://give.healthtree.org/give/628617/#!/donation/checkout?c_src=socialmedia
Avatar
ChioOsuna
Multiple Myeloma Discussion • November 14
Event: Living Well with Myeloma: Insights from Long-Term Thrivers
Hi Everyone! It's Chio from HealthTree, I want to invite you to join us to our next online event! 🌟 On November 18th at 03:00PM EST hear from 3 myeloma patients who have been living with the disease for 10+ years. They’ll share what’s helped them adjust, manage side effects, and find balance in daily life. Get practical tips, real stories, and encouragement from people who truly understand. 👉 Whether you're newly diagnosed or years into your journey, you’re welcome here. Register now!: https://healthtree.org/myeloma/community/events/nov25-living-with-myeloma-insights?utm_source=social_media&utm_medium=connect&utm_campaign=SMorganic&utm_content=general
Thumbnail for What are the latest advancements and future directions in the development of CAR T-cell therapy for diffuse large B-cell lymphoma?
Playlist: CAR-T Therapy

What are the latest advancements and future directions in the development of CAR T-cell therapy for diffuse large B-cell lymphoma?

Video details & playlist
Avatar
Bill
Multiple Myeloma Discussion • November 12
Motixafortide
Has anyone used motixafortide as a mobilizing agent before stem cell collection? If so, could you tell me where you were treated? I had a “failed” collection last week (in my first line of treatment) and am trying to decide how/whether/where to try again. Thank you in advance.
Avatar
Chelle14
Multiple Myeloma Discussion • November 11
Dry Eye Neurotopic Keratitis
Good afternoon, I'm curious to hear if anyone has suffered with NK due to severe dry eye post diagnosis and SCT. I started with severe dry eye after my stem cell transplant. What I did not know is I also had NK, which muted the pain signals, kind of like neuropathy. I pushed through the blurred vision and light sensitivity, thinking dry eye is a benigne condition. When my vision became bad enough, that it was interfering with my work and quality of life, I sought out a dry eye specialist. I was immediately diagnosed with NK and told I was at high risk of losing my left eye. I had a Prokera placed that same day, which stayed on for a week. I then had a Prokera placed on my right eye the following week, and then another on my left the week after. All while waiting on an insurance approval for eye drops called Oxervate, which run $100k for an eight week supply. I am on week three of my treatment and have not noticed any improvements. I brought this up to my oncologist, but was told it is not related to my cancer or treatment. If anyone has had a similar experience or knows anyone that has, I would be interested to hear how you or they are doing. Thank you!
Avatar
DIahanna • Admin
Multiple Myeloma Discussion • November 11
ACA Subsidies
The Shut down has effecttively ended. The Affordable Care Act Subsidies will expire at the end of the year
Avatar
LETICIA
Multiple Myeloma Discussion • November 10
M spike ,
I have MGUS. How do I find my M Spike number. I am new to this community.
Avatar
Pmp777@gmail.com
Multiple Myeloma Discussion • November 10
Experiencing Loss of Sense on Talvey?
Im on Talvey and seem to have lost my sense of taste. Has anyone experienced this before and how long would it last for?
Avatar
XimenaG • Admin
Multiple Myeloma Discussion • November 9
Wall of Gratitude
💜 This November, let’s fill our community with gratitude! 💬 Share in the comments 1–3 words that express your love, admiration, or thanks for the caregivers who inspire you, whether it’s a family member, friend, or someone who has cared for you during your journey. Let’s fill this space with kindness, encouragement, and appreciation Thank you for your words!
Avatar
XimenaG • Admin
Multiple Myeloma Discussion • November 9
Wall of Gratitude
💜 This November, let’s fill our community with gratitude! 💬 Share in the comments 1–3 words that express your love, admiration, or thanks for the caregivers who inspire you, whether it’s a family member, friend, or someone who has cared for you during your journey. Let’s fill this space with kindness, encouragement, and appreciation Thank you for your words!