So I'm reaching out to anyone on here who has done quadruplet therapy (either dara VRD or dara KRD) and has translocation 11;14. Just wondering how you have responded to your therapy and whether you have decided to proceed to ASCT or defer that to a later time. I have one more treatment left in cycle 5. As of end of cycle 4 my M spike had decreased from 3.05 to 1.18, my kappa has gone from 103 to 21, and my IGg down from 4500 to 1780. i don't think my m spike will go to 0 by the end of cycle 6 but I'd still rather try to extend therapy at least for two more cycles to see how low I can get those levels. Just searching for those of you who may be or have been in the same situation. FYI-I am being treated at MSK.

I had another bone marrow Biopsy and the result came back MDS Low risk and very likely CMML Cronic myelomonosystic leukemia.- high risk. My oncologist took me off Vidaza and said there was nothing else they could do for me other than blood transfusion…. Dacogen could possibly give me about a 25% chance. Or clinical trials…. It I am looking more towards quality of life as I am 85 and more than likely will not have much time on 5his earth anyway.. I have several mutations JAK2 TET2, , etc,,etc. also have many antigens and antibodies when i need blood transfusions. What would you do ?

When did you start looking for palliative care,….. how ill were you, what did they do for you to make you more comfortable. Was it helpful……

A friend of mine on east coast was recently diagnosed with myeloma and would like to see a myeloma specialist at Dana-Farber or Memorial Sloan Kettering. I told him that I would ask if you have any recommendations for myeloma specialists at either of these organizations. I’d appreciate any names that I can pass along. Thanks!

Hi all, so i had a sct in December 2024, It didnt work unfortunately so I started treatment again the folling June 2024 and have been doing well on weekly treatment since with my number all in range, last week my period came back after 15 months and I was full sure I had gone or was in the pre menopause I had all the symptoms hot flushes, bad night sweats, and now they are all gone, has this hap o ended to anyone else? Im waiting on a referral from a gynaecologist, im just curious for anyone else, im now 38

Preparing to start on a clinical trial at U of Penn. It is a new trial with Bispecific antibody Elranatamab (Elrexfio) and investigational drug Inobrodib (CCS1477). Is there anyone out there that is in this trial or anyone on one of these drugs and if so how is it going (response/side effect profile). The Bispecific is commercially available.

Join the conversation about MRD in multiple myeloma. 🩸 The 13th Annual Miami Myeloma MRD Meeting 2026 will bring together leading experts to share the latest research and insights on Minimal Residual Disease and its role in advancing myeloma care. If you're interested in MRD or following the latest updates in myeloma research, this is a great opportunity to learn and discuss with others in the community. 🗓️ April 10, 2026 ⏰ 7:30 AM – 5:30 PM ET 📍 Miami, FL | Virtual access available https://healthtree.org/myeloma/community/events/apr26-miami-myeloma-mrd-2026?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Does anyone know of soaps (dish and body) for very dry hands from neuropathy?

Peace all ✌️ I was just diagnosed with Lukemia CLL. Apparently I’ve had high white blood cell counts for the last 13 years but just found out about it recently. My Cancer Doctor wants me to receive a host of inoculations because of my low immunity to fighting off potential illnesses. The shots she listed were For Corona Virus. Shingles. Cocil pneumonia, flu etc. I have had the Moderna vaccine in the past. I’m just so Leary now about all of these stories about illnesses and weird happenings with these vaccines lately. Wondering if I would be better off without them. Anybody care to weigh in ???

Recently, one of my friends explained me the concept of autophagy and its affect on auto immune diseases. Did a 3 days of water fasting snd felt very good. I am planning to do it every month going forward. Does any one here do practice this? Any experience good or bad is appreciated.