Hi everyone! I am new here and live in the United Kingdom (London). I was first diagnosed with multiple myeloma in 2016, went into remission after chemotherapy and transplant but now relapsed and back to chemotherapy again. Unfortunately, this is not working well for me now as my very low platelets blood 🩸 is disturbing the process. As at now my platelets count is below 30 and my consultant does not want to continue the chemotherapy when is below 24. The normal platelets count of a normal human being is supposed to be: 1500-4500. You can see that this number of mine is with great concern. Traditionally, I have a history of low platelets. To cloth during bleeding is just not there and I fear this could even send blood to my brain and have stroke. Platelets transfusion was done ones but only pushed it up by 13 points and went back low the next week. Can any one help me?

Has anyone had a hip replacement? Did you ask for a ClonoSEQ test be performed on the hip joint that was removed? Any advice or suggestions regarding the pre and post surgery, recuperation?Coordination of maintenance treatment and taking Xgeva? Thanks!

Hi everyone, I am new here and about to start RVD. I would like to know if you take Revlimid in the morning or at night and does the time of day matter?

A bit confused. Recently went through CAR-T, with no response. It did not work. It seemed like a perfect solution. I am Extramedullary, and NonSecretory. My numbers were stable and low. After CAR-T my kidney numbers started to drop. PET CT, MRI showed plasmacytomas surrounding both kidneys and Adrenal glands. 2 a day radiation for 4 days helped this issue. In the mean time my Myeloma numbers started to climb. After some recovery from radiation I am on Elotuzumab, Pomalidomide and Dex. I have no idea if i am still Nonsecretory, just trying to get in a better place. Anyone else have similar characteristics.

Fred Hutch wants to know if they should keep storing my stem cells or if they should be moved elsewhere or discarded. I don’t suppose they’re still viable after nearly 19 years in the freezer. But I’m wondering if they would be of any use for research or anything. Any thoughts?

The HealthTree Moves Columbus 5K and 1 mile event is open for registration. This will be a virtual and an in person event so don't let distance discourage you from registering. Click on the link below for more information. Feel free to PM me if you have any questions or concerns Also, please send me an email if you would like to volunteer for the event. michelle@healthtree.org https://www.facebook.com/events/1274031416532390/?acontext=%7B%22event_action_history%22%3A[%7B%22mechanism%22%3A%22your_upcoming_events_unit%22%2C%22surface%22%3A%22bookmark%22%7D]%2C%22ref_notif_type%22%3Anull%7D

Hi, I am a high risk MGUS/BGUS patient who undergoing a partial total knee replacement in 2 weeks. Is there any standard protocol for salvaging the marrow &/or aspirate from the reaming of the femur or tibia for onncological analysis? Thanks, Peter

Specialty pharmacy delays delivering drugs: I have not had a RX refill delivered on time since last September 2022. I take Revlimid (lenalidomide) and Ninlaro. Both must be ordered through a specialty pharmacy and shipped to me. I've used 3 different specialty pharmacies. The first, Kroger, was the best, but fell out of network for Revlimid. Accredo was recommended and was by far the worst. One delay was 4 weeks with every excuse used to explain the delay. Every order was delayed significantly from October 2022, through January 2023. I worked with my physician's office to change to CVS. So far, with two refills, both have been delayed a day or two due to CVS issues processing the refill. My current refill is delayed due to CVS requiring payment of the co-pay in advance to ship. That is fine. My credit card has been on file with CVS for payment of the co-pay ($1474.39)! Does anyone have a good experience with their specialty pharmacy? Do you receive medications, especially Revlimid, on time?