Your Feed

Filter by
See content from
Back to the latest
Avatar
Pheba1
Multiple Myeloma Discussion • May 2
Fast-Pro Darzalex, delayed side-effects.
Just checking to see if anybody has the same side-effect rhythm that I do with the Fast-Pro. I get the shot the last Thursday of the month. Thursday I feel fine. Friday I feel okay. By Friday evening I feel a little funky. Saturday morning I feel like a can of busted biscuits, headache, fatigue. Sunday the same. By Monday I am back to my normal self. (as normal as anyone on chemo can be). Does anyone else have this delayed reaction.
Avatar
Iliana • Admin
Multiple Myeloma Discussion • May 1
New Trial for Advanced Myeloma with Prior Treatments
A new Phase 2 clinical trial, DOMMINO-1, is now recruiting people living with advanced multiple myeloma who have already received several prior treatments. This study is evaluating inobrodib in combination with pomalidomide and dexamethasone to better understand how this approach may work for patients whose disease has become more difficult to treat. Learn more about participation and see if this study could be an option for you: https://clinicaltrials.gov/study/NCT07096778 clinical@cellcentric.com +44 1799 531130
Avatar
grayAlligator
Multiple Myeloma Discussion • April 30
Post CAR-T cell transplant experience
I am 4 months into my CAR-T cell transplant experience and have lost my sense of taste. Has anyone else had this happen? How long does it last?
Avatar
Iliana • Admin
Multiple Myeloma Discussion • April 30
UtahGives: Supporting Blood Cancer Patients
Today’s the day – UTAHGIVES is here 💙 It’s a 24-hour celebration of generosity across Utah, and we’re coming together to support blood cancer patients and families. Our goal is to rally as many unique donors as possible and show the strength of this amazing community—no matter where you’re joining from. At HealthTree, we’re working every day to accelerate research, provide trusted tools, and connect patients with the support they need. And we truly can’t do it without you. If you’re able, we’d love your support today. Give here: https://www.utahgives.org/organization/Crowdcare-Foundation And if donating isn’t possible, sharing this with others makes a huge difference too 💙 #UtahGives #GiveWhereYouLive #GiveTogetherGrowTogether
Avatar
J
Multiple Myeloma Discussion • April 30
Isatuximab (Sarclisa) biweekly or monthly?
I'm on maintenance therapy with lenalidomide and isatuximab, 1 year after asct. There is possibility of switching from isatuximab biweekly to monthly. Any of you have done that? Is it as effective? How long you have been on monthly?
Avatar
Iliana • Admin
Myeloproliferative Neoplasm Discussion • April 29
Sharing Our MPN Experiences
Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
Iliana • Admin
Polycythemia Vera Discussion • April 29
Help Researchers Understand MPN Fatigue
AI-generated title
Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
Iliana • Admin
Myelofibrosis Discussion • April 29
Share Your Fatigue Experience for Research
AI-generated title
Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
DavidO
Multiple Myeloma Discussion • April 29
Co-pay Assistance Open
$10,000 available through Patient Advocate Foundation: https://copays.org/funds/multiple-myeloma/ Household Income Requirements: 500% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) Insurance Requirements: Medicare, Medicaid, or Military Benefits Residency Requirements: Must reside and receive treatment in the United States. Also $8000 from Health Well Foundation for Medicare patients: https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/ Household Income Requirements: 500% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) Insurance Requirements: Medicare Federal Poverty Guidelines for 2026 Annual Income Persons in Family 500% 1 $79,800.00 2 $108,200.00 3 $136,600.00 4 $165,000.00 5 $193,400.00 6 $221,800.00 7 $250,200.00 8 $278,600.00