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lecky81818
Multiple Myeloma Discussion • August 17, 2023
Debating an Upfront SCT: Anyone Else?
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Hello! Newly diagnosed high risk (1q) at 34 years old in June 2023. On induction chemo for 4-6 cycles of Dara-RVD. Then Dana Farber wants to immediately do an auto stem cell transplant. The cancer is aggressive 70-80% of my bone marrow, but I have no detectable bone lesions. I am HARDCORE debating getting the SCT. Anyone else?
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commodius_vicus
Multiple Myeloma Discussion • August 15, 2023
Managing Low Neutrophils on Revlimid?
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I had an SCT in Jan, 2022 and for about a year now I've been 21/7 cycle with 5mg revlimid after a monthly blood test. My August tests came back with low neutrophil counts and the oncological pharmacist pre-empted my cycle, said wait a week, redo the test and wait to hear from us before you start up again. I did that and they said the wbc levels were a little bit better, and to wait another week - maybe it'll fix itself - and repeat the process. Meanwhile, I'm extra concerned about infection and due to fly back east next month to visit my grandson. Has anybody had any experience with this? Thank you!
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Qunbin
Multiple Myeloma Discussion • August 12, 2023
Acupuncture & Blood Cancer: A Helpful Resource
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Does acupuncture provide any benefits to patients that are suffering from blood cancers and disorders? So the good news is that the answer is yes; it has a number of benefits on several levels. And the other very good news is that it’s very safe. Take a listen. https://www.beyondyourdiagnosis.org/q-and-a/does-acupuncture-provide-any-benefits-to-patients-that-are-suffering-from-blood-cancers-and-disorders/
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Leaveittolinda
Multiple Myeloma Discussion • August 11, 2023
Sharing CAR-T Therapy Experiences?
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I’m new to this group and joined because I have relapsed and may be starting the car-t therapy soon. I wanted to “hear” how it’s working for other myeloma patients. Thank you for your thoughts❤️