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SNMidkiff
Multiple Myeloma Discussion • July 15, 2024
Rising Lambda Chains: Seeking Understanding
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Hello. I am newly diagnosed and started treatment with velcade, darzalex, dex, and revlimid in May. All my numbers seem to be going down. My protein band has gone down to 0.37 from 2.59 with my light chain ratio at normal now. I was diagnosed with IgG Kapaa. My blood was drawn last week but did not receive treatment due to double ear infection. Why would my lambda light chains rise from 80 to 170? This makes me nervous that my way of thinking about normal is incorrect.
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violetLobster
Multiple Myeloma Discussion • July 13, 2024
My Journey to Remission and Healed Lesions
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I was diagnosed with MM in the beginning of 2020 (yup! right in the beginning of Covid pandemic!!) after months of pain in my bones...I quickly got connected to the MM service at Penn Medicine and started induction. I then moved to NYC and had my ASCT at Memorial Sloan Kettering...I stayed in remission for almost 2 years, had a slight rise in Kappas so was put on Daratumamab which quickly put me back in remission. I had to get off of Revlimid as it made my immunity so low I got pneumonia so my MM doc then put me on Velcade along with the Dara. I have been in a wonderful remission ever since and my PET showed all my lytic lesions were healed!! I am so blessed and my daughter is now pregnant and I am excited to become a strong and energetic Grandma!! I continue with my Qigong and yoga and long, long walks in the city!!! Blessings to everyone here!!
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anaGazana
Multiple Myeloma Discussion • July 10, 2024
Sharing IVIG Experiences & Zyrtec Info?
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My doctor wants to start me on monthly IVIG infusions to boost my immune system. My IGG levels remain in the 200's range due to myeloma treatment. I have read the long list of possible side effects. If you receive IVIG infusions, can you share your experience. I know that pre-medication with Benadryl and Tylenol is standard. I cannot take Benadryl due to a paradoxical reaction, so my doctor is recommending Zyrtec. If you pre-medicate with Zyrtec, what is the dosage? z