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chocolateCow
Multiple Myeloma Discussion • June 24
MGRS (I know it’s not MM, but it’s treated like MM)
OK, long story short, I was diagnosed with MGRS in 2021. Had a ACST and have been on maintenance since (Velcade and Darzalex). Went to the doctor today and he recommended CAR-T. Heard a lot about CAR-T for MM, but never for MGRS. I was wondering if ANYONE else has gone through this therapy or have heard of an MGRS patient having this done. All responses would be appreciated. Thanks, Rick
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Tylerc2425
Multiple Myeloma Discussion • June 24
How does everyone deal with the fatigue?
I'm 35 male who was diagnosed on 7/5/2025. Had ASCT on 3/16 and still battling fatigue. I seem fine on days when I'm out and about and doing stuff but when trying to work my office job from home will notice I will randomly fall asleep which obviously isn't ideal to maintain a job haha. Curious if this is what I can expect for the rest of my life or gets better. Currently on a break from all treatment but will start back on 7/14 with Dara/Rev. Dread that adding to the fatigue as well.
Thumbnail for Top Myeloma Updates from EHA 2026: New Therapies,Trials & Emerging Treatments | EHA 2026
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Top Myeloma Updates from EHA 2026: New Therapies,Trials & Emerging Treatments | EHA 2026

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Thumbnail for TRIlogy-4: Ramantamig’s Triple Target Attack on Myeloma—BCMA, GPRC5D, and CD3 #EHA2026
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TRIlogy-4: Ramantamig’s Triple Target Attack on Myeloma—BCMA, GPRC5D, and CD3 #EHA2026

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Thumbnail for SUCCESSOR-2 Trial: Mezigdomide Triplet Shows Powerful Results in Relapse/Refractory Multiple Myeloma
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SUCCESSOR-2 Trial: Mezigdomide Triplet Shows Powerful Results in Relapse/Refractory Multiple Myeloma

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tarheel67
Multiple Myeloma Discussion • June 24
Balancing Kaiser and VA Care: Anyone Else?
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I have been a member of Kaiser Permanente for years and have elected to receive my oncology care there. However, there are some definite financial advantages to also have a relationship with the VA so I have a PCP and a relationship with oncologists in both places. Does anyone else find themselves in a similar situation?
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Iliana • Admin
Multiple Myeloma Discussion • June 23
New Trial Option for Advanced Myeloma
Learn About the DOMMINO-1 Clinical Trial DOMMINO-1 is a Phase 2 study evaluating inobrodib in combination with pomalidomide and dexamethasone for people living with advanced multiple myeloma who have already received several prior treatments. Researchers are studying whether this treatment approach may benefit patients whose disease has become more difficult to treat. Clinical trials can provide access to investigational therapies while helping advance myeloma research. Learn more about participation: https://clinicaltrials.gov/study/NCT07096778?term=CCS1477-04&rank=1 Email: 📩 clinical@cellcentric.com Call: 📱 +44 1799 531130 #MultipleMyeloma #ClinicalTrials #CancerResearch #HealthTree
ClinicalTrials.gov

ClinicalTrials.gov

https://clinicaltrials.gov/study/NCT07096778?term=CCS1477-04&rank=1
Thumbnail for REST Trial: Can Higher Revlimid Doses Safely Improve Outcomes in Myeloma Patients w/ Kidney Disease
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REST Trial: Can Higher Revlimid Doses Safely Improve Outcomes in Myeloma Patients w/ Kidney Disease

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Caregiver
Multiple Myeloma Discussion • June 22
MM TP 53 (del 17)
My husband was diagnosed with MM TP53 (del 17) in March 2025. The MM also deleted other chromosomes. He was on Velcade from April 2025 - November 2025 and was taken off it because of the acute pneumonitis it caused. He was in the hospital every month with acute pneumonitis. In November, my husband had pneumonia and the Oncologist stopped Velcade. The Oncologist tried Revlimid, but my husband had a severe reaction to it and the the Oncologist stopped it. Since March 2025, my husband has been on Darzalex and seems to tolerate it. He has received chemo treatments for 15 months and his Oncologist ordered 5 more months of Darzalex. The Oncologist explained that a stem cell transplant was not possible because of the kidney damage caused by his MM. He had healthy kidneys until March 2025. He is now in Stage 4 renal disease. Do you know of foods which fight TP 53 (del 17)?
HealthTree

HealthTree

https://healthtree.org/myeloma/connect
Thumbnail for Smoldering Multiple Myeloma EHA Highlights: Multiple Options as Treatment | EHA 2026
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Smoldering Multiple Myeloma EHA Highlights: Multiple Options as Treatment | EHA 2026

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