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MariaJ • Admin
Multiple Myeloma Discussion • December 3, 2024
Support Research This Giving Tuesday
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EVERY donation this Giving Tuesday will speed breakthroughs in blood cancer! We are the only nonprofit laser focused on getting patient data and tools to researchers they didn’t have before. This important work simply cannot be achieved any other way. Your tax-deductible gift will connect leading researchers with patient data on a scale that powers life-changing discoveries. Invest in Cures. Invest in HealthTree. https://bit.ly/3BbRFow
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Isaac
Multiple Myeloma Discussion • December 3, 2024
Enjoying Wine Again After ASCT?
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Hello, anyone enjoy drinking wine? Just wondering how long after ASCT before I can enjoy a glass or two with a meal? I am now 3 months post ASCT and I haven't had a sip yet. Thanks 🙏
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ChioOsuna
Multiple Myeloma Discussion • December 2, 2024
Get Involved: Upcoming Cure Teams Webinar
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Join us! 🙌🏼 Our next webinar will provide information about HealthTree Regional Cure Teams, which launch in January 2025! 🎉 Cure Teams will support HealthTree's vision of a world where every patient and researcher has access to the essential data they need to make informed treatment decisions and discover cures ✨. Register here: https://healthtree.org/myeloma/community/events/dec2024-cure-teams-get-involved?utm_source=social+media&utm_medium=connect&utm_campaign=event&utm_content=general
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NKP64
Multiple Myeloma Discussion • November 30, 2024
Understanding Relapses and Treatment Patterns?
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Hi all As I try to understand relapses, I have a 3 part query. a) how many relapses could be possible? b) Also does every therapy post relapse has the same pattern- induction>consolidation>maintenance c) Is it possible to gain a better consolidation after relapse than the previous cycle? Many thanks
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alexandra.sazonova.prokouran@gmail.com
Multiple Myeloma Discussion • November 29, 2024
Experiencing Jaw Pain on Denosumab?
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Has anyone with multiple myeloma experienced jaw pain while on denosumab? I have multiple myeloma and have been receiving denosumab every three months. Over the past six months, I underwent two dental implant procedures in my upper jaw. Unfortunately, I developed severe jaw pain after the implants, prompting their removal. While the pain has improved, it persists in a milder form in the lower jaw. A PET-CT scan showed no structural bone damage in the jaw, only inflammation. Could this pain be related to an infection from the implants, or is it more likely osteoarthritis or osteonecrosis? Could the denosumab be a contributing factor? If so, would discontinuing denosumab help alleviate the pain or is it a permanent issue? Thank you very much, grateful to have access to this community!