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Lindak
Multiple Myeloma Discussion • June 26, 2025
Tips for Managing Anemia with MDS?
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Hi. I was recently diagnosed with MDS with Anemia. My doctor is monitoring my hemoglobin and will start injections with hormones if it drops below a certain level. I want to learn all I can do I can be prepared if necessary. I read that MDS typically is found in patients 60 years of age or older. But I had a second cousin who died from this when she was 26. There is a lot of cancer on my Mom's side of the family. I want to know what I can do for the anemia. If anyone has any suggestions please reach out to me. I plan on attending the session at UCF on Saturday. Linda
Thumbnail for IRAKLIA Trial: On-Body Subcutaneous Isatuximab Delivery in Myeloma | Muhamed Baljevic, MD | #EHA2025
Playlist: EHA 2025

IRAKLIA Trial: On-Body Subcutaneous Isatuximab Delivery in Myeloma | Muhamed Baljevic, MD | #EHA2025

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Molly
Multiple Myeloma Discussion • June 26, 2025
Bone Biopsy for Slow Recovery After SCT?
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Hi My doctor wants me to have a bone biopsy as my hemoglobin levels are still struggling to come back up after my SCT back in September 24. He thinks the bone marrow may have been damaged. Has anyone else has this issue? Thank you!
Thumbnail for HDP‑101: Promising Anti‑BCMA ADC with Novel Payload for Myeloma | Shambavi Richard, MD | EHA 2025
Playlist: EHA 2025

HDP‑101: Promising Anti‑BCMA ADC with Novel Payload for Myeloma | Shambavi Richard, MD | EHA 2025

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TamaraMac
Multiple Myeloma Discussion • June 25, 2025
Experiencing New Symptoms After Stopping Revlimid?
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I'm a 61 yr old Female with Kappa light chain MM in MRD status after 4 cycles of induction with VRD and a SCT in 1/2020. I was on a 10mg/then 5mg Revlimid maintenance until a few months ago. After stopping the therapy my Oncologist dropped me as a patient and I see a NP to do my labs every 3 months. I thought I would feel better after getting off Revlimid but I am experiencing severe hypotension with neuropathy and pain in my extremities. I have read about autonomic dystonia in SCT patients and I'm curious if anybody else is experiencing these same symptoms after stopping maintenance therapy?
Thumbnail for Circulating Tumor Cells- Non-Invasive Biomarker for Staging Myeloma | Luca Bertamini, MD | #EHA2025
Playlist: EHA 2025

Circulating Tumor Cells- Non-Invasive Biomarker for Staging Myeloma | Luca Bertamini, MD | #EHA2025

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JohnEustace
Multiple Myeloma Discussion • June 25, 2025
Sharing a Helpful UK Myeloma Podcast
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Apologies for the confusion in reaching the outstanding U.K podcast. Call it an age thing! Usually the latest podcast is available each Thursday a.m. Ths wek should see issue 14 themyelomaminutes.podbean.com Should reach the site. Remebr there are already very good back issues I know it helps John
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NKP64
Multiple Myeloma Discussion • June 25, 2025
New High-Risk Definition: Seeking Insights
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Hi all, FYI, High‑Risk Myeloma has been Redefined by IMWG. Can we get more insights on what constitutes the profile now and it needs to be looked upon at? Thanks
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Iliana • Admin
Acute Myeloid Leukemia Discussion • June 24, 2025
Welcome! Say Hello and Introduce Yourself
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Hi, I’m Iliana, the Social Media Manager at HealthTree.
We’re so excited to have you join HealthTree Connect! We’re building a new community, and we’d love for you to be a part of it.
Feel free to post in the General Discussion, or if you haven’t already, join a group and start connecting there. 👋 Introduce yourself and share something you’d like to learn or talk about—we’d love to get to know you! Thanks for being a part of the HealthTree community!
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Pheba1
Multiple Myeloma Discussion • June 24, 2025
Treatment Paused for Low IGG & Infections?
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Well, all chemo has been stopped. I posted earlier about having a head cold since May 3. I also had an infection in salivary glands, and am having CT scan of chest abdomen and pelvis. I have a cough that will not go away from the head cold. I have been coughing since May 3. IGG dropped below 25, 40 is minimum. Had IVIG infusion yesterday. Has anyone else been through this? I was on Darzalex and Revlimid. I was told to stop yesterday. Very unsure what this means. I think my doctor is concerned for my immune system and all of these infections. We just received report on IGG level from hospital where I had stem cell. IGG was up over 700, now it is under 25.
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kwm69
Multiple Myeloma Discussion • June 24, 2025
Darzalex and M-Spike Test Interference?
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7 months post transplant and had a complete response. Been on maintenance of Darzalex ( every other week) and Revlimid ( 10 mg). Originally diagnosed last year with lambda light chain. (IGG). This week my monthly results came back and, My M spike changed from zero to .21 and the notes said IGG type Kappa. I read that Darzalex can cause a false positive on monoclonal test. Anyone else experience this? Your thoughts?