Hello I have CLL and was diagnosed 15 years ago and have been lucky to not have to have infusion much. Have been on 4 different oral drugs since 2017 having trouble with blood counts too low anyone else have the same problem and what are you trying. I am on started on Imbruvica then Calquence then Venetoclax and now Japrica. I am trying B12 supplements to try and help but that does not seem to help. Thanks for any suggestions.

Good afternoon, Has anyone received blood products post CARVYKTI? If so have you had any complications from the transfusion itself? Thanks in advance!

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I have a 66 year old coachee (diagnosed in Apr. '24)that has relapsed and will be starting Krypolis, Sarclisa, and Dex. She is apprehensive about the new treatment and what to expect. She has some significant neuropathy and is taking B12 injections and magnesium. I have no personal experience with this line of treatment and some of the information I found here on Healthtree seemed pretty technical. If anyone has personal experience or suggestions for reading I would appreciate you sharing. I didn't want to overwhelm her. Thanks all!

How are you coping with fatigue and does it get better?

Does anyone have any issues with their eyes and a different feeling in their head, almost like a dizziness that connects with their eyes since starting g dexa and chemo?

I’m newly diagnosed with smoldering multiple myeloma last week. I’ve been through a myriad of testing and have a M spike that is riding too quickly I’m told. This is incredibly nerve wracking like I’m a ticking time bomb.? How do you handle this ?

I am getting an MRI at the end of this month as about 13 years ago the Dr. said I was ok and then I had an MRI and I had multiple Myeloma. My new cancer Dr. says I don’t need an MRI as my bloodwork shows I am in remission, but I haven’t had an MRI for two years and want to make sure. I was on Revlimid but have been off of it for a year now. My old Dr. wanted me to stay on it, but my new Dr. didn’t think I needed it. I moved or I wouldn’t have changed Dr.

Diagnosed with MM early 2019. 1st Oncologist had me on Velcade. Received excessive amounts of Velcade & experienced severe Neuropathy early on. Decided after 3 weeks to change Oncologist TG!! My New Oncologist recognized the damage bases on my 1st Chemo Treatments. He immediately aborted my current treament & began a series of Kyprolis Treatments. What a life saver!! in November of 2019 I went through a Stem Cell Transplant. It seemed to have worked for the 1st Month, soon after traces of MM were not at bay. Long story short, it was discovered I had a bad Chomosome, yup, P17 deletion, which began allowing the bad cells to enter in once again. Longer story short, im on now & Oral Med of 3mg of Ninlaro & has been wonderful, all my Markers are at bay & consider in a remission state! Thats my story for now & I'm sticking to it!!!

I have been through 2 SCT’s and have been in remission for 9 years. I went into remission after my first one. However, my transplant team had a tandem protocol based on my age and profile. I do not take any medications related to my MM. I follow the directions of my medical team to the letter. I’m here to support and help anybody who has questions. Stay strong! Stay positive!