Black caregivers—especially Black women—are often expected to be superheroes. To handle everything. To never break. But that expectation isn't honor; it's a burden that can break your spirit and your health. The stats are sobering: Black caregivers experience higher rates of caregiver stress, yet we're less likely to seek help. We navigate racism in healthcare while advocating for our loved ones. We manage chronic conditions at higher rates while putting ourselves last. This National Caregiver Month, let's normalize: * Asking for help * Admitting when we're struggling * Accepting that vulnerability is a strength * Seeking culturally competent support You are not "less than" for needing support. You're human. And you deserve the same love and care you give so freely to others.

Because gratitude means everything… 💫 It’s time to say thank you. Take a moment to share this letter with your caregiver, the one who stands by you through it all. 💌 Screenshot it or share it so they can see this message. Let’s fill this space with appreciation for those who give their hearts every day. 💜

Four days after receiving Kyprolis infusion, I noticed blood in my urine. Went to hospital. Test results showed platelet count down to 11K (from 136k a week earlier), creatinine at 2.25 (1.1 a week earlier) and eGFR at 30 (71 a week earlier). LDH at 997 indicates tissue damage. Has anyone had tissue damage related to Kyprolis? If so, was the damage permanent or did your kidney function recover over time?

Hello all, This post may be repetitive for some of you as I erroneously posted in the general group 😊 My question to the non-secretory people is two part. How often are you doing your PET to monitor your MM. Are you alternating with MRI to avoid excess radiation? Thanks and Happy Thanksgiving!

Hello all, Just wondering how often you are doing your PET to monitor your MM given the nature of the nonsecretory condition. Are you altering PET and MRI to reduce amount of radiation? Thanks and Happy Thanksgiving!

I am currently on Revlimid, the brand name version, and I have been using the co-pay help from BMS (Bristol Myers Squibb) to pay for the portion that my ACA insurance doesn’t cover. Starting in 2026, my ACA insurance no longer covers brand name Revlimid, only the generic lenolidomide. I know about the co-pay help from Blood Cancers United (aka LLS), but I wonder if there are any other organizations that might provide co-pay help for the generic lenolidomide for someone on an ACA insurance. Any suggestions where to look? I know about Teva, but they only help if you are under 300% FPL, and I don’t qualify.

Trials evaluating the single-agent Isatuximab, a CD38 monoclonal antibody (MoAb), in patients with relapsed/refractory amyloid light-chain (AL) amyloidosis. https://ashpublications.org/blood/article/146/21/2495/548147/Isatuximab-surface-strike-deep-response-in-AL

Hello everyone! I just discovered this group a few days ago after getting the result s from a bone marrow biopsy. I have been encourage and enlightened from some of the posts that I seen here. I haven't had a chance to speak with my hematologist yet, but I hope to over the next few days. My test are concerning based on what I found on the internet results. Here's the results: IgH (14q32) Rearrangement Detected (Atypical) 1R1F 5’IGH deletion or rearrangement 44.0% 11.9%. Can someone one help me decipher what this means until I am able to speak with my doctor? Thanks in advance for any help.

Hello everyone, I am a newly diagnosed high-risk MM patient in Las Vegas (Age 38, Female). This is all happening very quickly, and I am quite afraid of the delays in scheduling appointments. I have been diagnosed with active, high-risk multiple myeloma (C90.00), confirmed by a bone marrow biopsy showing 70-80% involvement and the "triple-hit" high-risk genetics (del 17p, t(4;14), 1q gain). I have an expedited referral to see Dr. Aaron Goodman or Dr. Carolyn Mulroney at the Sarah Cannon Transplant and Cellular Therapy Program at MountainView Hospital in Las Vegas. I have a few questions for the group, especially anyone who lives in Las Vegas or has experience with Sarah Cannon: Has anyone here been treated by Dr. Goodman or Dr. Mulroney at Sarah Cannon in Las Vegas? What was your experience like? . Since I am high-risk, I worry this delay is too long. Has anyone successfully managed to get an urgent appointment with them faster? What should I do in the meantime to manage anxiety and prepare? (I am monitoring symptoms but have no CRAB symptoms yet.) Any advice for a "newbie" starting intensive treatment in the Las Vegas area? Thank you so much for any advice or support you can offer. I appreciate any guidance from those who have been through this. Best wishes,

I received my 90-day post CAR T results, and all results showed Zero cancer detected. I want to be happy, but my ClonoSeq shows a new sequence detected. My specialist couldn't give me an answer as to what this is. It reads as follows: New dominant sequence found. Significance unknown. The previous sequences tracked for the purpose of MRD determination were not detected. I feel very confused and not even sure what questions to ask. Any advice would be helpful. Thank you.

is anyone on the regime of dara faspro, & pomalyst (stopped Dex in April bc I had taken it for 5 yrs previously)

Has anyone heard of or tried manuka honey to help with neuropathy? I did not see any mention of it in the side-effect solutions. Thanks!

Hi everyone, I wanted to understand your experience with KRD/KPD treatment schedules. For those who were on carfilzomib, how long did you remain on the 3-times-per-cycle schedule before your doctor reduced it to 2 times per cycle? Was there a standard protocol followed in your case — for example, completing X cycles before shifting to a less intensive schedule, or did it depend on your PET-CT/M-protein/light chain response? Any insights into how your oncologist decided when to reduce the frequency would be very helpful.

I had Stem Cell . Bone marrow transplant at +35 day. My bones still hurt, how long will that go on?

Have said before they took it from my back bone, and that time they told me I had MM. I never got medicine, and I get checked every 3 months, still to this day. I need a doctor that deals with MM, I don't know where I stand. I can barely walk, pains in my back, legs stomach, there is no cure. This is a long story who can help me? This is my second cancer, I had anal cancer and when they found it it was a stage 4!!! Sounds wild , I know the pain I was in for at least 3 years, and one day I went to a knew dr. He too told me it's an anal tear, I walked out and went to 1 last dr. I knew his name but not how great he really was! The next morning my G.P called me in and he told me I have cancer, went to the hospital and they found it! Just like Farrah Facwett, I made it. I feel the same thing is happening now, I know from the pain , can someone help me please?