I've been on one chemo or another since my diagnosis of MM in 2011. SCT in 2016. Now in 2026 food tastes awful and I have no appetite. Is anyone else having this problem with food? I've lost 25 lbs. over the past year. My Dr. doesn't seem concerned. Peanut butter is the most recent casualty. Right up until a few weeks ago It was one of the few things left I liked, but now it just tastes off. Horseradish sauce, butterscotch pudding and cinnamon rolls are still good.

Good morning, I had AML 2 yesrs ago still on Rydapt and moved from california to tennessee getting divorced and we do not have Kaiser so having to pay 150.00 every business any way i can get sone help? Thank you, Debbie

Is it safe for myeloma patients to take melatonin as a sleep aid. I have heard conflicting points of view.

I had a bone marrow biopsy last Wednesday and just saw the results in my chart. I see the Dr on Feb 18. It looks like I am MRD-. Which is wonderful, however I am nervous about going off of the Lenalidomide 10 mg 21 days. I have been on this maintenance for three years starting after my stem cell transplant. I am ready for a break but feeling a bit overwhelmed with stopping. Wondering if anyone else has experienced this and how they are doing? Thanks for any input!!!

Can you get side effects six months later from Car-t I heard even a year later As anyone experienced this???

Has anyone had a stem cell boost after Cart t-cell therapy for bone marrow failure? G-CSF shots haven’t worked to boost neutrophils.

I’m going in for my transplant February 16. Any suggestions or last minute thoughts for my recovery?

Recently due to Insurance changes my insurance has forced me to switch to Generic Teva Lenalidomide. If your on Teva Lenalidomide and had been on Branded Revlimid in the past what has your experience been with the switch. Also if you changed back to Branded what was your reasoning or documentation you used to get an override to go back to Branded Rev? Thank you Rick

I was wondering if it is helpful to get a coach and submit your medical records to Health tree. Also is it hard to connect. Thank you.

Hello- wondering if anyone is involved with a trial AZD0305. It targets GPRCH5. I am 20 month post Car T (Carvykti ) and relapsing. Small lesion in my pelvis and Kappa climbing monthly (16 then 25 now 60). So not awful but in light of lesion and climbing kappa monthly we need to start treatment due to my history of developing lesions with small kappa numbers. I treat at U of Penn. Thanks for any information available to share.

Hello- wondering if anyone is involved with a trial AZD0305. It targets GPRCH5. I am 20 month post Car T (Carvykti ) and relapsing. Small lesion in my pelvis and Kappa climbing monthly (16 then 25 now 60). So not awful but in light of lesion and climbing kappa monthly we need to start treatment due to my history of developing lesions with small kappa numbers. I treat at U of Penn. Thanks for any information available to share.

Was diagnosed July 2021 didn’t do sct did the standard treatment Dara Velcade dex revlimid and zometa got very good results on maintenance with 5 milligrams Revlimid since January 2024. Developed prostate cancel had to do 5 days a week for 6 weeks radiation. That’s under control feeling good. Doc wants me to get a pet scan with contrast, very worried about all the radiation I’m getting. Since 2021 had 2 pet scans ct scans X-rays shoulder jaw elbows . Doc says it’s a small amount and dismisses my concerns. Does anyone have any advice for me?