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greenWasp
Multiple Myeloma Discussion • August 1, 2023
Questioning Remission With New Symptoms
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My husband was diagnosed in 2017and was told he is in remission about 9 months ago. Now come symptoms: extremely irritated stomach, loss of appetite, loss of sleep, weight loss, followed by trembling, some confusion, drooling. Got him some vitamins and appetite has improved but not much else. Is he in remission or not? Is this a new malady he must struggle with?
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peachGorilla
Multiple Myeloma Discussion • July 31, 2023
Difficulty Relaxing Back Muscles Post-Surgery?
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Hi all, I’ve had MM for 7 months numbers have been dropping but not fast enough, getting referred to more specific hospital U of M. My disease was diagnosed in between my 1st and 2nd back surgery. I’ve had a total of for surgeries to fix and repair 12 compression fractures and it did help the pain but I have 1 big problem still. I can’t get my body to adjust and allow my back to relax unless I set in a chair and concentrate with focused breathing. When I attempt to walk it just automatically tightens up, and I walk around with my shoulders shrugged up. I feel if somehow I can get my body to relax my back I would feel a lot better.
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Ktimb
Multiple Myeloma Discussion • July 26, 2023
Experiencing Neurotoxicity After Carvykti?
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My husband is 58 and has had a stem cell transplant and just recently CAR-t with Carvykti. His stem cell only lasted 4 months before the cancer came back. The side effects from Car-t have been awful. His case is complex. Has anyone else had this with side effects? He was in ICU for CRS and now dealing with bad neurotoxicity. He had the severe headaches and now has numbing in his abdomen, back, feet and hands. Has anyone else had this? He is a month past the transplant.
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DEVYANI (Aditi)
Multiple Myeloma Discussion • July 23, 2023
Pomalyst for High Risk Maintenance: Why Switch?
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Anyone with High Risk Multiple Myeloma on their first line of treatment who switched to Pomalyst from Revlimid during maintenance? If so could I ask why? Could not tolerate revlimid? Did not get a deep enough response from induction/consolidation? Wanted a more potent drug in maintenance in order to extend their remission? Experienced an increase during maintenance and used Pomalyst to bring numbers back down?