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charcoalPanda
Multiple Myeloma Discussion • March 15, 2024
Managing Fatigue on Revlimid Maintenance?
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Hi. I was diagnosed with MM in June 2018 and underwent auto stem cell transplant in April 2019. I have been on maintenance Revlimid (10 mg) since that time and generally doing ok. The problem is that I have had crushing fatigue and get sick very easily since transplant. Has anyone found anything to help with this? I generally eat a lot of fruits and vegetables and exercise somewhat regularly. Thanks!
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Annborell
Multiple Myeloma Discussion • March 15, 2024
CAR-T Chemo & Hospital Stay: What to Expect?
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Getting ready for Car T. I will do collection in a week. Once cells come back (6 wks) I will admit to hospital, so they are telling me mid-May. I am wondering if anyone can share what the chemo is like that they give you 3 days before you go into hospital for infusion. They are saying it is a low dose and manageable, but I feel like that is an overused word. Also I am wondering how people managed through the hospital stay? I know CRS and neurological side effects are main things to deal with after infusion. I am told I won’t be able to drive for 2 months after infusion- yikes! I guess because of the neurological risks? I am 57 yo female, in good shape, I workout regularly and while treatments have been rough overall as I got to the fouth failed treatment, I am managing fine without any major side effects.
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Iliana • Admin
Multiple Myeloma Discussion • March 14, 2024
Finding Support With a HealthTree Coach
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What is HealthTree Coach? A free tool to find the support you need from experienced patients. Let us know in the comments if you're a Coach or if you have a HealthTree Coach!
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DianaSoto • Admin
Multiple Myeloma Discussion • March 13, 2024
Cure Tour Locations: Help Us Decide
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Did you see the announcement of the HealthTree Cure Tour? 📍 We will be announcing dates and locations soon. Watch Jenny's video talking about the HealthTree Cure Tour. Let us know in the comments where you'd like us to go ✈️🚗
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khakiUrchin
Multiple Myeloma Discussion • March 13, 2024
Getting a Transfusion for Anemia: My Story
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Tim, how bad is the anemia? When my hemoglobin dropped below 7, I was given a blood transfusion and it helped a lot. Blood donors are few these days so blood is in high demand and labs are very stingy with transfusions