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Kneyed
Multiple Myeloma Discussion • December 5, 2024
Experiences With Mepron During Maintenance?
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Salute to all fellow survivors 👍🏻 After 8 cycles of DVRdara Im now going into remission/ maintenance treatments. 💪 My Dr. is doubling up my Acyclovir and Adding atoquavone = Mepron to my new regime of 10ml Lenolidamide and once a month DarzalexFP . Anyone getting experience with Mepron? I’m kind of questioning this new Pharma used to treat Malaria / fungal lung infections. Grateful for your response.
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ChioOsuna
Multiple Myeloma Discussion • December 4, 2024
Sharing ASH 2024 Highlights for Patients
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📍 We’ll be live from ASH 2024 in San Diego this week to share: ✅ Data presented by HealthTree ✅ Interviews with top experts ✅ Simple, patient-friendly recaps Stay tuned for articles and videos highlighting what YOU need to know! #ASH2024 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare
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Marga
Multiple Myeloma Discussion • December 4, 2024
Managing Revlimid Insomnia and Urination?
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Hi there, I have a question re: insomnia and Revlimid. My husband started maintenance treatment recently, after SCT, of Revlimid and Dara, every few weeks. This will change eventually to once a month or so. He seems to be tolerating well, except that with adding Revlimid again to his meds, he has to get up multiple times at night due to full bladder. And either that or the medication itself is also creating insomnia that's been hard to manage. Has anyone found good solution for this? Is it temporary as his body adjust to taking Revlimid again? Thanks!
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Long4Tahoe
Multiple Myeloma Discussion • December 4, 2024
Experiences With CAR-T Prep Chemo?
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As I prepare for Car-T Infusion I have a concern. I will have three days of Fludarabine and Cytoxan prior to receiving my Car-T infusion. I'm told it's a pretty heavy chemo. My greatest concern is that I am so very very sensitive to drugs. Did you have to have this chemo and how did it go for you? Thanks so very much, I appreciate every one of you.
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ChioOsuna
Multiple Myeloma Discussion • December 4, 2024
Heads-Up: 2025 Drug Coverage Changes
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Did you hear the news? 📣 Starting January 1, 2025, there will be significant changes to Medicare and other insurance plans' coverage of formulary vs. non-formulary drugs. Find out here: https://healthtree.org/myeloma/community/articles/possible-2025-drug-coverage-changes?utm_source=social+media&utm_medium=connect&utm_campaign=article&utm_content=general
Possible Drug Coverage Changes - HealthTree for Multiple Myeloma

Possible Drug Coverage Changes - HealthTree for Multiple Myeloma

All blood cancer patients and their loved ones should review their insurance plans and make sure their treatments are still being covered for 2025.

https://healthtree.org/myeloma/community/articles/possible-2025-drug-coverage-changes?utm_source=social+media&utm_medium=connect&utm_campaign=article&utm_content=general
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MariaJ • Admin
Multiple Myeloma Discussion • December 3, 2024
Support Research This Giving Tuesday
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EVERY donation this Giving Tuesday will speed breakthroughs in blood cancer! We are the only nonprofit laser focused on getting patient data and tools to researchers they didn’t have before. This important work simply cannot be achieved any other way. Your tax-deductible gift will connect leading researchers with patient data on a scale that powers life-changing discoveries. Invest in Cures. Invest in HealthTree. https://bit.ly/3BbRFow
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Isaac
Multiple Myeloma Discussion • December 3, 2024
Enjoying Wine Again After ASCT?
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Hello, anyone enjoy drinking wine? Just wondering how long after ASCT before I can enjoy a glass or two with a meal? I am now 3 months post ASCT and I haven't had a sip yet. Thanks 🙏
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ChioOsuna
Multiple Myeloma Discussion • December 2, 2024
Get Involved: Upcoming Cure Teams Webinar
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Join us! 🙌🏼 Our next webinar will provide information about HealthTree Regional Cure Teams, which launch in January 2025! 🎉 Cure Teams will support HealthTree's vision of a world where every patient and researcher has access to the essential data they need to make informed treatment decisions and discover cures ✨. Register here: https://healthtree.org/myeloma/community/events/dec2024-cure-teams-get-involved?utm_source=social+media&utm_medium=connect&utm_campaign=event&utm_content=general
HealthTree Regional Cure Teams: Get Involved! - HealthTree for Multiple Myeloma

HealthTree Regional Cure Teams: Get Involved! - HealthTree for Multiple Myeloma

Learn about HealthTree Cure Teams launching in January 2025, offering resources, volunteer opportunities, and Q&A to support blood cancer cures

https://healthtree.org/myeloma/community/events/dec2024-cure-teams-get-involved?utm_source=social+media&utm_medium=connect&utm_campaign=event&utm_content=general