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bamauro1013
Multiple Myeloma Discussion • March 16, 2025
Connecting With a Patient From a Story?
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Hi, I'm new to this page but I have multiple myeloma and have been in remission for 11 year's. I read the patient story about John and Ann Bailey and would like to connect with them. Any suggestions on how I can do that? Sincerely, Barbara Mauro
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Getta293
Multiple Myeloma Discussion • March 15, 2025
Early Relapse Post-SCT: What Was Your Next Step?
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Hello, after 8 months of my SCT my MRI shows a new ill , Dr suggested Car-T but I want to get a different treatment, anyone relapse a short time after SCT , and what treatment they received. Thank you
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JohnD
Multiple Myeloma Discussion • March 15, 2025
Relapsed After Many Therapies: What's Working?
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Hi, I have MM 9 1/2 years. Been through tandem stem cell transplants, usual drugs, car-t, Teclistamab and Tequalamab. And recently relapsed. Anyone in the same boat and what treatment are you getting. Is it working? John
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kmburke60016
Multiple Myeloma Discussion • March 15, 2025
Jumping Rope Post-SCT: Anyone Else?
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Prior to diagnosis (one year ago in 1 week!) I was lifting heavy, had even gained 10 pounds of muscle in the year before diagnosis. SCT was 3 months ago. I am walking daily with a weighted vest, but now have this very round belly that I would like to get rid of, and get myself back into shape. When I was lifting, between sets I would jump rope. Several sites recommend staying away from jumping rope because of the impact, but I think with proper form it's very low-impact. Anyone else here jumping rope? It's such an efficient exercise, I'd love to get back into it.
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HealthTree User • Admin
Chronic Myelomonocytic Leukemia Discussion • March 14, 2025
Share Your Experience to Shape CMML Programs
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Hi everyone! I hope you all are well. This year, HealthTree Foundation is expanding our efforts to support CMML patients through education, community-building, and patient-driven research. As we develop these programs, it’s essential that we incorporate the patient voice every step of the way. I’d love the opportunity to connect with you for a 30-minute video call in the next week or two to hear more about you and your experience with CMML. Your insights will play a crucial role in shaping our programs to truly reflect the needs and priorities of CMML patients. Please let me know if you would be open to this, and we can find a time that works for your schedule. I truly value each of your perspectives and would be honored to have the chance to learn from you. Hope to hear from you! Katie Braswell Director of Patient Education at HealthTree Foundation