Hello I am new, not very good with technology or English. My name is Janeth, my husband was diagnosed with Multiple Myeloma last August, but he knew they was a possibility for the past two years but decided not to tell me Until the Dr said it was . He did chemo and started stem cells collection, didn’t collect enough so he took a break and he staring again on March . I try the best I can to help him but sometimes is very hard . Before being disappointed he has always being very afraid of getting sick (covid , flue, stomach virus) so now of course he’s gotten worse, I can’t see friends without feeling guilty, even outside, I wear a mask , ask the questions. Do you feel sick? Have you been close to anyone who’s being sick ? He totally takes me for granted, he also had a kidney disease so I need to cook plant base food only and measure . Like 1/4 brown rice, 2 Oz of chicken, 2 o 3 Oz of pasta ,when I forget because my memory is shot , he gets angry like how dare you forge what I need I don’t even know if I’m gonna be able to come back to this cycle cause I don’t even know how I got here

📍 Greensboro, NC, we’re coming to you. Join us on Saturday, March 21 for HealthTree Connect to Cures, a free, in-person event created for blood cancer patients and caregivers in your community. ✨ Learn directly from academic and community doctors ✨ Connect with others who truly understand ✨ Discover trusted resources, tools, and support ✨ Take home personalized materials to help you feel informed and empowered Lunch, parking, and beverages are provided. Space is limited, and this event will not be recorded. 👉 Register today to attend in person https://healthtree.org/blood-cancer/community/events/c2cgreensboro2026?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

📍 Greensboro, NC, we’re coming to you. Join us on Saturday, March 21 for HealthTree Connect to Cures, a free, in-person event created for blood cancer patients and caregivers in your community. ✨ Learn directly from academic and community doctors ✨ Connect with others who truly understand ✨ Discover trusted resources, tools, and support ✨ Take home personalized materials to help you feel informed and empowered Lunch, parking, and beverages are provided. Space is limited, and this event will not be recorded. 👉 Register today to attend in person https://healthtree.org/blood-cancer/community/events/c2cgreensboro2026?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Wondering where others have started with 1st refractory treatment

What does it mean when doctors say 80% partial response, after stem cell transplant. Does this mean the transplant did not work?

Some stories don’t just inspire, they stay with you. On February 26, join us for “Unshaken: Navigating Blood Cancer with Jason Mook,” a special event featuring Jason’s powerful story of living with CLL and how education and community helped him and his family navigate diagnosis and care. 🎥 We’ll watch a featured video together 💬 Then Jason Mook will join us live to answer your questions in a Q&A 📅 Feb 26, 2026 | 7:00–8:30 PM EST 🔗 Register here: https://healthtree.org/myeloma/community/events/feb26-watch-partu-unshaken-documentary?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general Bring your questions or add yours in advance so we can prepare with Jason. #BloodCancer #CLL #PatientStories #CancerSupport #PatientEducation #CancerCommunity #WeCareWeCure #HealthTree

I started taking Bactrim the early part of September 2025 after my CAR T and have been on it continuously since. I have started experiencing hair loss (at a more rapid rate than usual) I am 66 years old woman and have had thinning over the years. I was wondering if anyone else has experienced this? I have my 6-month CAR T follow up next week. I may request that I be taken off it. Please let me know and if it grew back once stopped.

Hello All, Is a group health insurance plan more likely to cover Car-T as apposed to Medicare? If anyone has personal experience or knows from others experiences and would like to share, thank you in advance. I’m trying to decide whether to stay on my husband’s health insurance or switch over to Medicare now that I am 65. Best, Robin

I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra

I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra