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HealthTree User • Admin
Multiple Myeloma Discussion • January 27, 2023
Sharing Our Furry Friends & How They Help
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About a year after diagnosis my husband and I got this cute little pup. She is a 5 year old Maltese named Hope, she quickly became a huge part of our family, and helped me through some of my toughest days. Post a picture of your furry friend, and feel free to share their name/age. How have they helped you in your myeloma journey? Let's flood this feed with our furry friends!
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geobartell@gmail.com
Multiple Myeloma Discussion • January 27, 2023
Considering SCT at 71: Seeking Advice & Confidence
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My husband is 71 and was diagnosed 5 months ago. He's doing well on dara, velcade, dexa and revlimid and now only every other week. Our hematologist/oncologist, Dr. Vogl at U of Penn, recommended a SCT. We're nervous about dying in the hospital from infection etc. He had a cardiac stent placed in 2015 so will need some anticoagulant added to the process. Considering that Dr. Vogl knows all this and recommends the SCT, we're inclined to go forward. Anyone have any wisdom on attitude, confidence, health tips?
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dcgirl
Multiple Myeloma Discussion • January 27, 2023
Managing SMM: My Positive Lifestyle Story
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Good evening to all. I was diagnosed in December 2019 with SMM. I remember being really angry and anxious at first and then Covid set in. I decided I was going to fight like hell to beat this beast. I switched to a total plant based, organic diet and exercise and meditate at least 6 days a week. Things are going so well that my doctor now only wants to talk to me once every six months. (and that's cause I insisted instead of once a year). Feeling strong and determined!!
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TheTimeIsNow
Multiple Myeloma Discussion • January 26, 2023
Sharing Tips for Slowing Progression?
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I was dx with MGUS in 2018 with cytogenic factors like t(4:14), 1q and del 13 as well as 5-10% plasma cells. So far so good as I am staying abnormally stable with my labs. LOL! I have always been active but was in a slump with it so recently decided to up my game and exercise 5 days/wk in some form or fashion. Look forward to learning what others are doing to keep from progressing.
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audrey • Admin
Multiple Myeloma Discussion • January 26, 2023
New Here? Introduce Yourself
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Hi all, and welcome to this group! Feel free to comment below and introduce yourself. My name is Audrey and I was the primary caregiver to my abuela (grandma). It's not an easy task!
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MikeW
Multiple Myeloma Discussion • January 26, 2023
Managing Revlimid Rash: Experiences & Tips?
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I see we don’t have many team members yet, but as you join, if you’ve had any experience with Revlimid rash / itch on your maintenance therapy I would like to hear about it. I was at 10mg. but had to drop to 5mg due to rash / itch. I’m starting week 3 on 5mg and the rash/ itch is coming back. Ughhh.
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audrey
Multiple Myeloma Discussion • January 21, 2023
Happy Weekend! What Are Your Plans?
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I hope you are all having a great start to your weekend! Any fun plans? Feel free to share a picture! This morning we are taking it easy, and the boys are playing with LEGOs. I want to go for a run, but it's so cold!!!
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Stevonmfl
Multiple Myeloma Discussion • January 20, 2023
Managing SMM With Diet & Supplements
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I am intermediate SMM and using diet and a few good supplements in hopes of holding back the beast. Using Curcumin and Liposomal Vitamin C along with a mostly (80%) veggie diet, with nuts, fruit and yogurt.
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audrey
Multiple Myeloma Discussion • January 20, 2023
Connecting: Share Your Word for the New Year
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WELCOME to Connect!! To get the conversation going, comment below your word (or phrase) for the new year. Mine is: intentional! I look forward to forging relationships, better understanding your questions and needs, and celebrating tiny and big victories with you. I'm excited for discussions, challenges, recipe and pet picture exchanges, and much more. Feel free to ask any myeloma questions and get answers from people in the same situation as you.