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VAT70
Multiple Myeloma Discussion • April 6, 2023
Thoughts on Sea Moss for Smoldering Myeloma?
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Has anyone tried Sea Moss? Friend is encouraging me to take this to help with inflamation, joint, digestive issues, and anti cancer effects. My friends mean well but I get neverous when it comes to herbs with smoldering myeloma.
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ggranlees
Multiple Myeloma Discussion • April 6, 2023
Back Pain & DRd: Timeline for Relief?
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My mom was recently diagnosed with multiple myeloma. She just finished her 2nd cycle of treatment. She is still experiencing a lot of back pain that wraps around to the front. Has anyone had this feeling and how long did it last before the treatments kicked in and lessened the pain? Her treatment is Daratumumab, Revlimid, and Dexamethasone.
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QUEASY
Multiple Myeloma Discussion • April 5, 2023
My Journey & Managing Dex Sleep Issues
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I was on Rev and Dex until the rev stopped working. Then on to polymist and Dex. Side effects are mostly from the dex. Messed up sleeping. 5 years on the Rev after stem cell and a couple so far on polymist
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Crisbanta
Multiple Myeloma Discussion • April 1, 2023
Balancing Dehydration and Sugar Concerns?
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So, dealing with dehydration. Bloodwork says my kidneys are still okay. Question: doc says take electrolytes daily to counter the dehydration. All I can find that I can tolerate is something for kids called KinderLyte. It has dextrose, though apparently not as much as it tastes like it has. But, aren't we not supposed to take in sugar because it feeds cancer? Have you all completely cut sugar out? I largely have until this. (I know some of the other electrolyte drinks use fake sugars, but I can't tolerate the sugar substitutes.) I feel like I have to decide between risking more cancer or getting so badly dehydrated that I end up in crisis and even possibly damage my kidneys. Any help?