A dietician at local hospital said it was safe for my brother to try whey protein powder in food along W his high protein diet and boost shakes to try to gain weight and lost Did anyone try it or know if it’s safe for someone who is restarting IVIG treatments back up again??? Any feedback would be appreciated

Hi, I suffer from ongoing backache. I am thinking to try steam or dry sauna. I wonder if anyone is using sauna in this community. Thanks, Abdallah

How are people treating insomnia on treatment day? I take Darzalex, Revlimid and Dexamethasone for my MM. My sleeping pill has been ineffective.

Will the different interest groups return? There seemed to be more participation when these were options.

HealthTree is developing a survey to better understand the emotional and family impact of an Acute Lymphoblastic Leukemia (ALL) diagnosis. The survey explores changes in daily routines, sources of emotional support, and how families adapt throughout treatment. We are looking for adult ALL patients and caregivers of pediatric ALL patients to join a live Zoom discussion and help review the survey before it is launched. Your feedback will help ensure the questions reflect the real experiences of patients and families. Interested? Comment below or email Eliza at eliza.prickett@healthtree.org to learn more.

GoodRx announced Wednesday the launch of GoodRx Companion, a subscription program that offers access to virtual healthcare services and prescription medications at discounted prices. Through the $14.99 monthly GoodRx Companion subscription, users can access free and low-cost generic medications, online care visits and additional healthcare services. The company says the new subscription advances its strategy by adding broader offerings alongside its weight loss, erectile dysfunction and hair loss programs. More than 200 generic medications are free through the telehealth platform, with “hundreds more” for less than $10 across pharmacies nationwide, according to the company. Telehealth visits are $19 through GoodRx Companion to address common health conditions, such as influenza, urinary tract infections (UTIs) and more.

Dear Fellow Travelers, This is my first time using this platform. I had 4 mos of Velcade, Darzalex (Faspro) and Methylprednisolone last fall followed by a stem cell transplant in March. For the first time on Friday I started Carfilzomib 54mg,m2 (along with Faspro and the Methylpredisone) which is the drug that has been prescribed for my monthly maintenance treatment. I am a breast cancer survivor. In 2008 I had 27 lymph nodes removed from my right arm. I had the Carfilzomib infusion in my left side but my right arm the very next day was swollen and bloated & has now developed lymphemena. Has anyone else had this happen while on Carf?

I've been thinking a lot about both fatigue and stamina during my time in maintenance as I have random issues with both. While doing my exercises this morning I came up with a gas tank metaphor that helps me get it straight. Please let me know if this makes sense. Fatigue: You wake up and the needle is below E. Blinking takes effort. No matter how much you try to put in the tank, the needle steadfastly remains on E. Try again tomorrow, maybe the hole in the tank will self-repair over night. Stamina: You wake up, the needle shows there's fuel in the tank but the gauge may or may not be broken. At some point in the day, usually unannounced, you WILL run out of gas. No matter how much was in the tank to start, you're just not getting the mileage you thought you should. Refilling the tank may take an hour (rest, snacks) or it may take over night.

Prior to being diagnosed with MM, I was being managed by an endocrinologist and was on Prolia injection every 6 months, for years. Once I was diagnosed with MM, my oncologist started Zometa infusions, every 3 months. Just recently, I was referred to the rheumatologist by my PCP, when I complained of bilateral TENDON pain, practically everywhere. The rheumatologist ordered an MRI and the bigger issue was that I encountered a stress fracture. Currently, I am 1.5 years post-ASCT and MRD negative. I did have bone lesions with my diagnosis, but nothing major or debilitating. I seem to be caught between a rheumatologist and my oncologist, determining what med I should actually be on. I do have a DEXA ordered and maybe that will be the deciding factor, but I wonder if seeing an endocrinologist would be better? I do know that my calcium rises, just over normal, by the time I am ready for the next Zometa infusion. NO idea why that has been a trend since ASCT. I would think I would not want to return to Prolia, if this is the case. Any thoughts or wisdom to share? Who manages your osteoporosis after ASCT? How long post-ASCT have you been on Zometa? Thank you kindly.