Hello. I am autistic. I found out in December. It's still sinking in. Everything is different now, time feels fleeting. There's not enough time to process, to make sense of it all, and to feel caught up. And yet, with a new perspective, time passes more slowly. More deliberately. More intentionally. I would like feedback, from any who have gone through this before. Chemo is May 13th. I have been briefed on what to expect and the formalities. Hospital policies and procedures, forms and releases, disclosures, disclaimers, descriptions. But it's just paper, with no emotion, and no convincing way to convey expectations. Going in blind, I would like insight into what to expect. The parts that are not written or discussed. The stories only told by family and survivors of what they encountered, experienced, and felt. What stood out, and what what missing. What it felt like, and how the days passed. Thank you..

I am 7 months post aSCT in remission on maintenance therapy for Plasma cell leukemia, an aggressive form of myeloma. An MRI shows severe L hip arthritis which needs replacement as I have had difficulty walking the last few months. I am wondering if others have had joint replacements post SCT and how long they waited after SCT to do so? Thanks

I am a myeloma patient trying to help another one who recently started Talquetamab. She is suffering from extremely painful skin peeling on her feet and hands. Please comment if you have experienced, how it was treated, whether it was resolved, and whether it improved over time. Thanks much.

I am a myeloma patient trying to help another one who recently started Talquetamab. She is suffering from extremely painful skin peeling on her feet and hands. Please comment if you have experienced, how it was treated, whether it was resolved, and whether it improved over time. Thanks much.

I will be having a vertebroplasty next week for compression fractures of L3 & 4. Has anyone had the procedure and what was the recovery like?

Just learned they are going to add Cytoxcin to my new "cocktail" with the ninlaro tho I read a study saying ninlaro didn't really help it much? Anyone else on either/both? Thanks

as a new mgus/smoldering myeloma patient just found out my journey has just begun in just 1 year jumped up to both is that concerning?

Hi my husband has been on Talquetamab since February. He gets a shot every other week and they added Dara weekly. He still has no taste. The day after he gets his Talquetamab shot, he get chills and starts shaking, is anyone doing this combination? If so, what side effects are you experiencing? What can he do to help with taste? He doesn’t eat meat or vegetables.

Anyone else on ninlaro? With or without Dex?