I was recently diagnosed with mm in the beginning of the year as result of stage 5 kidney dysfunction. I started induction treatment of DVD. On my 4th cycle of treatment I was given my first shot of Xgeva. Few days later I notice pain in my left arm, not sure if it is bone pain or muscle pain. Has anyone experience this? My Dr. recommend adding cytoxin to my current treatment. I would like a feedback to cytoxin.

Being an Army person I like short and sweet. Also abbreviations kill me. I took Talvey for my multiple myeloma which didn’t work. Also has skin, taste and nail side effect. Unreal. So from my point of view I wouldn’t use it.

Hello All, Wondering if anyone has taken Dararumamab after relapsing and if so, what type of side effects did you experience and were you able to work? I’m 60 and was diagnosed in August 2017 with renal failure, anemia, and numerous lytic lesions. Achieved remission fairly quickly 🙏 after an agressive CyBorD regimen for 4 months, continued with Velcade and Ninlaro for another 15 months. I’ve been medication free since then. I continued with blood work every three months and for the past 20 months the Kappa Light Chains have slowly and steadily climbed upward and are now at 428. My hematologist/Myeloma specialist and I met yesterday and agreed to continue to monitor once a month and set parameters on the numbers he is most concerned with so that if/when the numbers reach or exceed the parameters, we will have a conversation about Daratumamab treatment. I am feeling good now without any symptoms besides a little fatigue.Thanks in advance!

If you have read "Living Well with Cancer", I would love your opinion on it? TIA, Keith 3X Cancer Survivor

I am 72 years old and was diagnosed with Multiple Myeloma in October of 2022. I had an autologous stem cell transplant on May 10, 2023. Since the transplant, I have had ongoing night sweats (have to change 3 to 4 times every night). Doctors keep telling me it is not the Myeloma. I am wondering if anyone else has had problems with night sweats. If so, what can be done to stop them. Please, anyone, help!

For the many Healthtree members in the Carolinas area, especially the Charlotte area, we want to invite you to our LOCAL myeloma support group. We are online at MyelomaSupport.org We would love you to participate in our support group.

Good day. I was diagnosed with multiple myeloma in 2022. I am due for an autologous stem cell transplant. My doctor will be applying for incapacity leave, I just want to find out if 6 weeks will suffice for recovery and will I be able to go back to work after that. I am in South Africa by the way.

My father has been suffering from multiple myeloma for the past two years. His third immunotherapy, darzalex, is going on. He has become extremely weak now. He’s barely able to do his simply tasks like bathing etc Since darzalex started this weakness has taken another lower level. His bones are fragile and even a simple leg movement causes ligament wear and tear. He’s 79. He’s going through physiotherapy too. Right after the weekly treatment, his stomach gets upset sometimes and sometimes he just doesn’t feel like eating anything. Are these normal symptoms? Is there anything anyone can advise? It’s heartbreaking to watch him like this. The ongoing darzalex treatment is at the stage of finishing his 8th shots this Friday.

First of all, I want to start off saying I thank you Lord Jesus for your divine healing and the doctors and nurses and everyone who worked with me in my life it’s been six months since the CT transplant and I thank God God, I still have been doing Well I’m excited about the next chapter in my life. I don’t know what that entails. I go to the doctor once a month now to check on my blood and the rest of My blood counts. I started after care things like infrared therapy hyperbaric chamber. And also ozone and foot detox it has helped me tremendously Now it’s time for me to go to the dentist. We’ll see how that goes.

Does anyone have any experience with a new monoclonal antibody approved to prevent Covid-19? It is called Pemgarda.

Has anyone else had issues with Medicare not approving charges for the doctor who did a 3-D genetic analysis of the tissue from my bone marrow biopsy? Medicare also didn’t approve the same doctor’s evaluation of my blood smear. Any suggestions, coding issues?

Do U get blood transfusions often and if so where? I had to go to ER for mine. Also anyone been on ninlaro? side effects? Thanks

My name is Donna. I’m 54 and will turn 55 on June 15. I was diagnosed at 53 with high risk MM. I had my stem cell transplant in November 2023. I’m currently in remission. I hope to connect with other people like me.

Might the 40 mg of Dex taken weekly on injection day (Dara) be the reason for 1000 mg of sugar in urine sample given that very same day?

Does anyone have experience with loosing taste and smell after Car T (due to CRS reaction)? If so how long did it take for it to come back?

Hi - I was diagnosed with Lambda Light Chain Myeloma in 2016 and have been on several therapies since and for the most part, have done very well. I have basically exhausted the less invasive options at this point and now it appears that my myeloma is becoming active again so my Dr. has suggested CAR T Cell Therapy with Carvykti. I am terrified of the possible neurological side effects, especially ones that cannot be reversed and I'm wondering how others have done on this therapy and if they have experienced the neurological side effects and if so, how were they treated, how long did they last or are they ongoing. Was it a difficult recovery? Did you need home assistance after hospitalization? I look forward to being on the other side of it and not having any treatments for a long time, but I honestly feel like I'll be walking into fire as I enter the hospital. Can anyone provide some feedback of the realities of this? Thank you. Wishing you all well!