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ChioOsuna
Multiple Myeloma Discussion • December 4, 2024
Sharing ASH 2024 Highlights for Patients
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📍 We’ll be live from ASH 2024 in San Diego this week to share: ✅ Data presented by HealthTree ✅ Interviews with top experts ✅ Simple, patient-friendly recaps Stay tuned for articles and videos highlighting what YOU need to know! #ASH2024 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare
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Marga
Multiple Myeloma Discussion • December 4, 2024
Managing Revlimid Insomnia and Urination?
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Hi there, I have a question re: insomnia and Revlimid. My husband started maintenance treatment recently, after SCT, of Revlimid and Dara, every few weeks. This will change eventually to once a month or so. He seems to be tolerating well, except that with adding Revlimid again to his meds, he has to get up multiple times at night due to full bladder. And either that or the medication itself is also creating insomnia that's been hard to manage. Has anyone found good solution for this? Is it temporary as his body adjust to taking Revlimid again? Thanks!
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Long4Tahoe
Multiple Myeloma Discussion • December 4, 2024
Experiences With CAR-T Prep Chemo?
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As I prepare for Car-T Infusion I have a concern. I will have three days of Fludarabine and Cytoxan prior to receiving my Car-T infusion. I'm told it's a pretty heavy chemo. My greatest concern is that I am so very very sensitive to drugs. Did you have to have this chemo and how did it go for you? Thanks so very much, I appreciate every one of you.
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ChioOsuna
Multiple Myeloma Discussion • December 4, 2024
Heads-Up: 2025 Drug Coverage Changes
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Did you hear the news? 📣 Starting January 1, 2025, there will be significant changes to Medicare and other insurance plans' coverage of formulary vs. non-formulary drugs. Find out here: https://healthtree.org/myeloma/community/articles/possible-2025-drug-coverage-changes?utm_source=social+media&utm_medium=connect&utm_campaign=article&utm_content=general
Possible Drug Coverage Changes - HealthTree for Multiple Myeloma

Possible Drug Coverage Changes - HealthTree for Multiple Myeloma

All blood cancer patients and their loved ones should review their insurance plans and make sure their treatments are still being covered for 2025.

https://healthtree.org/myeloma/community/articles/possible-2025-drug-coverage-changes?utm_source=social+media&utm_medium=connect&utm_campaign=article&utm_content=general
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MariaJ • Admin
Multiple Myeloma Discussion • December 3, 2024
Support Research This Giving Tuesday
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EVERY donation this Giving Tuesday will speed breakthroughs in blood cancer! We are the only nonprofit laser focused on getting patient data and tools to researchers they didn’t have before. This important work simply cannot be achieved any other way. Your tax-deductible gift will connect leading researchers with patient data on a scale that powers life-changing discoveries. Invest in Cures. Invest in HealthTree. https://bit.ly/3BbRFow
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Isaac
Multiple Myeloma Discussion • December 3, 2024
Enjoying Wine Again After ASCT?
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Hello, anyone enjoy drinking wine? Just wondering how long after ASCT before I can enjoy a glass or two with a meal? I am now 3 months post ASCT and I haven't had a sip yet. Thanks 🙏
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ChioOsuna
Multiple Myeloma Discussion • December 2, 2024
Get Involved: Upcoming Cure Teams Webinar
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Join us! 🙌🏼 Our next webinar will provide information about HealthTree Regional Cure Teams, which launch in January 2025! 🎉 Cure Teams will support HealthTree's vision of a world where every patient and researcher has access to the essential data they need to make informed treatment decisions and discover cures ✨. Register here: https://healthtree.org/myeloma/community/events/dec2024-cure-teams-get-involved?utm_source=social+media&utm_medium=connect&utm_campaign=event&utm_content=general
HealthTree Regional Cure Teams: Get Involved! - HealthTree for Multiple Myeloma

HealthTree Regional Cure Teams: Get Involved! - HealthTree for Multiple Myeloma

Learn about HealthTree Cure Teams launching in January 2025, offering resources, volunteer opportunities, and Q&A to support blood cancer cures

https://healthtree.org/myeloma/community/events/dec2024-cure-teams-get-involved?utm_source=social+media&utm_medium=connect&utm_campaign=event&utm_content=general
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NKP64
Multiple Myeloma Discussion • November 30, 2024
Understanding Relapses and Treatment Patterns?
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Hi all As I try to understand relapses, I have a 3 part query. a) how many relapses could be possible? b) Also does every therapy post relapse has the same pattern- induction>consolidation>maintenance c) Is it possible to gain a better consolidation after relapse than the previous cycle? Many thanks
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alexandra.sazonova.prokouran@gmail.com
Multiple Myeloma Discussion • November 29, 2024
Experiencing Jaw Pain on Denosumab?
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Has anyone with multiple myeloma experienced jaw pain while on denosumab? I have multiple myeloma and have been receiving denosumab every three months. Over the past six months, I underwent two dental implant procedures in my upper jaw. Unfortunately, I developed severe jaw pain after the implants, prompting their removal. While the pain has improved, it persists in a milder form in the lower jaw. A PET-CT scan showed no structural bone damage in the jaw, only inflammation. Could this pain be related to an infection from the implants, or is it more likely osteoarthritis or osteonecrosis? Could the denosumab be a contributing factor? If so, would discontinuing denosumab help alleviate the pain or is it a permanent issue? Thank you very much, grateful to have access to this community!
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ChioOsuna
Multiple Myeloma Discussion • November 27, 2024
Sharing Experiences With Bispecifics
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3-Year Real-World Study on Bispecific Antibodies This observational study explores the real-world experiences of patients using bispecific antibodies for multiple myeloma treatment. We’re gathering insights on every stage—from initial awareness to quality of life after four months of treatment. Learn more here: https://healthtree.org/myeloma/curehub/private/research/EuXByoiOsjjWtVmLuu4M?utm_source=social+media&utm_medium=meta&utm_campaign=3yearbispecifics&utm_content=general
HealthTree

HealthTree

https://healthtree.org/myeloma/curehub/private/research/EuXByoiOsjjWtVmLuu4M?utm_source=social+media&utm_medium=meta&utm_campaign=3yearbispecifics&utm_content=general
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ChioOsuna
Multiple Myeloma Discussion • November 27, 2024
Understanding Real-World Data Challenges
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What are the challenges associated with using real-world data? 🔬 Research goes beyond new drugs—it includes trials with approved treatments, surveys, and studies to improve patient care and outcomes. 🌟 📚 Learn more in HealthTree University: https://healthtree.org/myeloma/university/courses/3wW8ZeSj7YjuUathUuIH?utm_source=social+media&utm_medium=connect&utm_campaign=HTU&utm_content=general
Real World Data: What are challenges associated with using real world data? | HealthTree University Multiple Myeloma

Real World Data: What are challenges associated with using real world data? | HealthTree University Multiple Myeloma

Learn about challenges associated with using real world data in this HealthTree University lesson by a cancer specialist.

https://healthtree.org/myeloma/university/courses/3wW8ZeSj7YjuUathUuIH?utm_source=social+media&utm_medium=connect&utm_campaign=HTU&utm_content=general
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NKP64
Multiple Myeloma Discussion • November 27, 2024
M-Spike Rising on Maintenance - Similar Experiences?
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My father aged 69, had his MM detected in January 2024 with M spike at 2.73 He had 1q gain. He was on VRD treatment and M spike had reached 0.72 by April in just 3 months time. Bortezomib was stopped after total 5 months due to early signs of peipheral neutropathy. And Bortezomib was stopped and he continued with Dex(20mg) 2 times a month and Lenalidomide (10mg). August M protein was 0.56 Few days back, he complained of backache and as was the plan of doing M protein test every 3 months, we did and it has increased to 1.2 Is it very concerning? Has anybody had a similar journey? Would be very useful to understand the same? Thank you!
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Iliana • Admin
Multiple Myeloma Discussion • November 27, 2024
Online Yoga Study for Myeloma Symptoms
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Researchers at the University of Arizona are conducting a national clinical trial to determine whether yoga can improve the physical 🏋️‍♂️ and mental 🧠 health of myeloma patients. This study aims to assess how yoga affects symptoms like pain 🤕, fatigue 💤, anxiety 😟, and overall quality of life. Patients on active treatment can join weekly online yoga classes 🧑‍💻 and track their progress 📊 to help determine the benefits of this practice. While HealthTree will not be facilitating this study, we recognize the importance of physical activity 🚶‍♀️ within the myeloma community and wanted to share this exciting research opportunity with you. Learn more here: https://buff.ly/4eVRhJu
Can Yoga Help Myeloma Patients on Treatment? - HealthTree for Multiple Myeloma

Can Yoga Help Myeloma Patients on Treatment? - HealthTree for Multiple Myeloma

Explore how yoga can improve physical and mental health for myeloma patients in a national clinical trial by the University of Arizona.

https://buff.ly/4eVRhJu